Innovative Medication Delivery Program Improves Clinical Outcomes for Pediatric Patients with Sickle Cell Disease
A new BMC study finds that there is a statistically significant decrease in hospitalizations and acute chest syndrome for participants after one year of enrolling in the program.
Read MoreBMC Is Primed to Deliver New Gene Therapies for Sickle Cell Disease, Beta Thalassemia
Eligible patients in BMC’s Center of Excellence in Sickle Cell Disease may soon be relieved of debilitating pain through transformative gene therapies
Read MoreBoston Medical Center’s Chief of Pediatric Hematology Testifies on Beacon Hill In Support of Sickle Cell Bill
This new legislation would allow for the creation and maintenance of a sickle cell disease registry, which is key in closing racial gaps and improving outcomes in sickle cell disease.
Read MoreWhen Medicine Gets Personal: 5 Narratives That Moved Us This Year
This year’s community stories touched on the overdose crisis, sickle cell disease, and the mental health toll of the COVID-19 pandemic.
Read More‘A Cure Affordable for All’: What Drives Jason and Devin McCourty’s Sickle Cell Disease Advocacy
Inspired by their Aunt Winnie, the McCourty twins have made finding a cure for sickle cell disease a driving force of their life’s work off the football field.
Read MoreNew Strategies Aim to Improve Sickle Cell Disease Care
Progress toward improving outcomes for adults with sickle cell disease hinges on more qualified, trained physicians and investment in longitudinal research.
Read MoreWhy Are Therapeutics Lagging for Sickle Cell Disease?
Structural racism has neglected generations’ suffering from sickle cell disease. Novel therapies are on the horizon, but can they affordably be brought to the masses?
Read MoreReducing Care Fragmentation in Sickle Cell Disease
Comprehensive, multidisciplinary services that provide whole-person care can be difficult to find. Experts are changing that.
Read MoreCOVID-19, Sickle Cell Disease, and a Critical Need
Respiratory viruses are known to cause severe complications in people with sickle cell disease, many of whom already face significant challenges.
Read MoreShifting the Culture of SDOH Screening in Specialty Clinics
Research from a sickle cell disease clinic hopes to shift the philosophy of subspecialty clinics to embrace a more holistic view of patient health.
Read MoreTelementoring Bridges the Gap in Sickle Cell Disease Care
Project ECHO leverages the expertise of specialists to help community providers across the region deliver evidence-based care for their patients with SCD.
Read MoreOur Clinic Was Struggling With No-Shows. So We Called an Uber.
A pilot program in a pediatric hematology clinic suggests ride-hailing services are an effective, low-cost solution for patients with transportation barriers.
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